Xplore: News, Insights, and Resources

Visit this page often to learn about the latest news, insights, and resources available from RARE-X.

Xplore RARE-X

Videos

RARE-X GDPR Overview

In this video, RARE-X’s Data Protection Officer, Barry Weber, explains how RARE-X achieves

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Videos

RARE-X October Science & Research Update

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, summarizes the October Science

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RARE-Xtra/Podcasts

Empowering the Next Generation Rare Disease Advocate: The Merger of Global Genes and RARE-X

Global Genes and RARE-X announced their respective boards of directors have signed a definitive

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Insights

Empowering the Next Generation Rare Disease Advocate

There are almost 11,000 distinct rare diseases (10,867 to be precise) – a number continuously

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Insights

A Ready Source of Funding to Advance Rare Disease Therapies

When California voters approved Proposition 14 in 2020, it created $5.5 billion in funding for the

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Insights

RARE-X Convenes RARE-X Exchange, Organization’s Inaugural User Conference

Ryan Colburn has a penchant for things that go fast. He’s worked as an engineer on racecars,

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Uncategorized

RARE-X Science & Research Roundup – the Exchange Forum Edition

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, recaps Exchange – A Patient

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Videos

RARE-X Science & Research Roundup – recapping the August 18, 2022 call

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, recaps the August Science and

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Insights

RARE-X Exchange Patient Innovator Forum to Help Advocates Advance Data to Treatments

Rare disease advocates and organizations have learned that the path to a treatment begins with

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Videos

RARE-X Wants to Build the Data Infrastructure for Rare Diseases

For people with common health problems like diabetes or high blood pressure or high cholesterol,

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