Xplore RARE-X

Be Heard: Patient Perspectives in Novel Therapeutics Value-Based Discussions

Two important representatives from RARE-X, Vanessa Vogel-Farley, RARE-X – Data Collection/Neuro Leader, and Craig Martin, RARE-X – Board of Directors, are speakers on this panel discussion from the Global Genes LIVE! Summit in September 2020.  The panelists discuss value demonstration and reimbursement models for novel therapeutics impacting rare disease communities.


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