Xplore RARE-X

What is RARE-X? An Introduction.

Patient Engagement Leader, Megan O’Boyle, and Data Collection/Neuro Leader, Vanessa Vogel-Farley, introduce their journey to RARE-X and explain what RARE-X is.  They also explain how RARE-X enables rare patient communities to gather, structure, and securely share critical patient data, through a common platform, in collaboration with researchers, drug developers, and clinicians anywhere in the world.


Share on Facebook
Share on Twitter
Share on LinkedIn
Share via Email
Translate »