Xplore RARE-X

Why is RARE-X so important?

In this video, Patient Engagement Leader Megan O’Boyle, and Data Collection/Neuro Leader Vanessa Vogel-Farley, explain the critical importance of RARE-X and why the time is right for RARE-X to aid rare disease patient databases. RARE-X will accelerate diagnosis, disease understanding, and future treatments and cures across all rare diseases.


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