Megan O’Boyle – ORPHAN DRUGS & RARE DISEASES 2020 – 11-19-20

Megan O’Boyle discusses the challenges of starting a rare disease patient registry and gives tips on how to avoid the pitfalls. Megan is the Patient Engagement Leader for RARE-X.  She presented at the 13th ORPHAN DRUGS & RARE DISEASES Conference, November 18 – 19, 2020.

 

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