PATIENTS' DATA POWERING PROGRESS

Privacy and Security for Patient Data Collection

Managing issues of data privacy and security are a big task. Most rare disease patient organizations do not have the expertise, staff, and financial wherewithal to navigate the complex legal, technical, and policy landscape of privacy. This video shows the steps RARE-X takes for privacy and security when patients share their data. RARE X Privacy And Security Animated Video Script VO.docx

 

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