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RARE-X Science & Research Roundup – recapping the August 18, 2022 call

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, recaps the August Science and Research Call presented to patient community leaders. She also answers questions from the call submitted by onboarded patient groups. If you have questions you would like Karmen Trzupek or Vanessa Vogel-Farley to answer in future calls, please submit them via this link.

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