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Xplore Recent Posts
RARE-X Exchange Patient Innovator Forum to Help Advocates Advance Data to Treatments
August 17, 2022
RARE-X Wants to Build the Data Infrastructure for Rare Diseases
July 20, 2022
RARE-X Marks a Year of Accomplishments
July 6, 2022
Power of Being Counted Author Discusses New Estimate for Rare Diseases
June 22, 2022
RARE-X Releases New Report that Uncovers Large Number of Previously Uncounted Rare Diseases
June 7, 2022
The Power of Being Counted Report
June 7, 2022
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Insights and Recommendations for Organizational DEI Strategies
April 2, 2022
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Creating a Faster Path to a Rare Disease Diagnosis
January 5, 2022
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Reinventing the Consent Process to Make It Patient-Centric
October 20, 2021
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A Collaboration with a Shared Vision for Transforming the Rare Disease Landscape with Patient Data
May 17, 2021
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RARE-Xtra: The Challenges of Long-Term Follow-Up Studies for Cell and Gene Therapies
March 28, 2021
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Accelerating Treatments for Rare Disease through Data Sharing – Podcast
January 15, 2021
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