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Category: RARE-Xtra/Podcasts
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An Open Science Data Challenge to Address Rare Neurodevelopment Diseases
December 15, 2022
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Empowering the Next Generation Rare Disease Advocate: The Merger of Global Genes and RARE-X
October 13, 2022
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The Power of Being Counted Report
June 7, 2022
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Insights and Recommendations for Organizational DEI Strategies
April 2, 2022
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Creating a Faster Path to a Rare Disease Diagnosis
January 5, 2022
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Reinventing the Consent Process to Make It Patient-Centric
October 20, 2021
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A Collaboration with a Shared Vision for Transforming the Rare Disease Landscape with Patient Data
May 17, 2021
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RARE-Xtra: The Challenges of Long-Term Follow-Up Studies for Cell and Gene Therapies
March 28, 2021
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Accelerating Treatments for Rare Disease through Data Sharing – Podcast
January 15, 2021
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