Search
Patients
Exchange Forum
Information Sessions
Researchers
Industry
About Us
Mission & Vision
Board of Directors
Team Members
Corporate Advisory Council (CAC)
Advisors
Partners
DEI Advisory Council
Careers
Press
Our Work
RARE-X Data Platform
The RARE-X Difference
Diversity, Equity, and Inclusion
Case Studies, White Papers, and Reports
Xplore
Connect
About Us
Mission & Vision
Board of Directors
Team Members
Corporate Advisory Council (CAC)
Advisors
Partners
DEI Advisory Council
Careers
Press
Our Work
RARE-X Data Platform
The RARE-X Difference
Diversity, Equity, and Inclusion
Case Studies, White Papers, and Reports
Xplore
Connect
PATIENTS' DATA POWERING PROGRESS
Search
Patients
Exchange Forum
Information Sessions
Researchers
Industry
PATIENTS' DATA POWERING PROGRESS
Search
Patients
Exchange Forum
Information Sessions
Researchers
Industry
Search
Patients
Exchange Forum
Information Sessions
Researchers
Industry
About Us
Mission & Vision
Board of Directors
Team Members
Corporate Advisory Council (CAC)
Advisors
Partners
DEI Advisory Council
Careers
Press
Our Work
RARE-X Data Platform
The RARE-X Difference
Diversity, Equity, and Inclusion
Case Studies, White Papers, and Reports
Xplore
Connect
About Us
Mission & Vision
Board of Directors
Team Members
Corporate Advisory Council (CAC)
Advisors
Partners
DEI Advisory Council
Careers
Press
Our Work
RARE-X Data Platform
The RARE-X Difference
Diversity, Equity, and Inclusion
Case Studies, White Papers, and Reports
Xplore
Connect
PATIENTS' DATA POWERING PROGRESS
Category: Reports
Xplore RARE-X
Search for:
Search Button
Categories
Case Studies
Events
Infographics
Insights
Press Releases
RARE-Xtra/Podcasts
Reports
Videos
White Papers
Xplore Recent Posts
RARE-X Exchange Patient Innovator Forum to Help Advocates Advance Data to Treatments
August 17, 2022
RARE-X Wants to Build the Data Infrastructure for Rare Diseases
July 20, 2022
RARE-X Marks a Year of Accomplishments
July 6, 2022
Power of Being Counted Author Discusses New Estimate for Rare Diseases
June 22, 2022
RARE-X Releases New Report that Uncovers Large Number of Previously Uncounted Rare Diseases
June 7, 2022
Global Genes releases NEXT 2022: Redefining the Possible report
March 4, 2022
Read More →
IndoUSrare and RARE-X Conduct Feasibility Study For A Patient-Owned Health Data Collection Program for India
April 20, 2021
Read More →
National Economic Burden of Rare Disease Study
March 18, 2021
Read More →
Global Genes Next 2021 Report: A Time for Resilience and Ingenuity
March 9, 2021
Read More →
World Economic Forum Global Data Access For Solving Rare Disease Report 2020
June 16, 2020
Read More →
Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
June 16, 2020
Read More →
Translate »
