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Huma and RARE-X partner to accelerate research for 9,500 rare diseases
April 14, 2021
RARE-X Explores Patient-Owned Data Gathering for Cell and Gene Therapy Developers
March 30, 2021
White Paper: Enabling the Future of Cell & Gene Therapies through Non-Proprietary Patient-Owned Data Collection
March 29, 2021
RARE-Xtra: The Challenges of Long-Term Follow-Up Studies for Cell and Gene Therapies
March 28, 2021
RARE-X Infographic – How It Works
March 23, 2021
National Economic Burden of Rare Disease Study
March 18, 2021
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Global Genes Next 2021 Report: A Time for Resilience and Ingenuity
March 9, 2021
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World Economic Forum Global Data Access For Solving Rare Disease Report 2020
June 16, 2020
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Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
June 16, 2020
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