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RARE-X is a 501(c)(3) rare disease technology nonprofit focused on supporting the acceleration and development of life-altering treatments and future cures for patients impacted by a rare disease. Enabled by best-in-class technology, patients, researchers, and other technology vendors, RARE-X will gather structured, fit-for-purpose data to share broadly, benefitting from 21st-century governance, consent, and federated data-sharing technology.  RARE-X is building the largest collaborative patient-driven, open-data access project for rare diseases globally. We are a team of dedicated rare disease advocates and data experts. Come join our team! Current openings are listed below.  If interested, please send your resume and cover letter of interest to jobs@rare-x.org .

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Clinical Outcome Assessment Methodology Lead

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