PATIENTS' DATA POWERING PROGRESS

Enabling the Future of Cell & Gene Therapies through Non-Proprietary Patient-Owned Data Collection

White Paper

Enabling the Future of Cell & Gene Therapies through Non-Proprietary Patient-Owned Data Collection

This paper explores the primary issues and requirements for data gathering that cell and gene therapy developers face. It also considers solutions, and the role a standardized non-proprietary data collection platform, such as RARE-X, can play in addressing these challenges. 

Authors:

  • Betsy Bogard
  • Morrie Ruffin
  • Daniel Levine
  • Nicole Boice

Special thanks to the following people and organizations for their input and collaboration:

  • Paul Howard
  • Petra Kaufman
  • Craig Lipset 
  • Ian Winburn
  • ARM Foundation for Cell & Gene Medicine
Translate »