Compete4Cures
Kick off the New Year and Compete 4 Cures!
Join Cory Fiene and Friends for the
8th Annual Tennis and Pickleball Charity Tournament
to support critical research for rare and undiagnosed patients and their families.
January 1, 2023
10:30am- 4:00pm
Lifetime Rancho San Clemente
111 Avenida Vista Montana, San Clemente, CA 92672
* 9:30am Registration & Warm- Ups Begins
Individual Player Participation Fee: $125
Includes:
– Round-robin tournament play
– Event T-Shirt
– Lunch
– Drink Ticket
100% of proceeds raised will benefit RARE-X, a non-profit 501c3 organization that supports rare disease communities with tools and resources to drive critical research.
Tennis Tourney Format
This year 40 doubles players will compete for the coveted Tennis Challenge win. This will be a blinded doubles draw. Male players should be ranked 4.5 and above. Female players should be ranked 5.0 and above.
Pickleball Tourney Format
New this year, 64 pickleball players will compete in two categories. Social and Competitive (3.0 and above). Bring your own partner or be paired with someone new.
With Your Support:
We can reach our goal of supporting 200 rare disease communities and 10,000 patients by the end of 2023
Thank You to Our Event Sponsors
The Johnston Family
The Fiene Family
Why Rare Disease and RARE-X Goals
The Realities of Rare Disease and It’s Impact on Families
- Rare disease impacts 1 in 10 Americans
- There are 10,800 known rare diseases, and with Genomic Sequencing, approximately 200 new diseases being discovered annually
- Over 400 million people impacted worldwide, with another 400 million as primary caregivers
- 50% of Children Diagnosed with a rare disease won’t live past their 5th birthday
- 85% of rare diseases are genetic
- 80% if rare diseases are considered Ultra-Rare [affecting less than 8500 people worldwide]
RARE-X Support
- Pateint Advocates rely on RARE-X to help support them on their research driving journey
- Rare Disease Patient Communities have access to Technology Infrastructure, Data Governance, Patient Support, research pipeline collaborators
- RARE-X enables collaborations with critical rare disease organizations that support research and development for ultra-rare disease
- RARE-X is inclusive: Undiagnosed, nof1 and patient communities of all sizes can access the tools, resources, technology and patient support at no charge
