What is RARE-X? An Introduction.

Patient Engagement Leader, Megan O’Boyle, and Data Collection/Neuro Leader, Vanessa Vogel-Farley, introduce their journey to RARE-X and explain what RARE-X is.  They also explain how RARE-X enables rare patient communities to gather, structure, and securely share critical patient data, through a common platform, in collaboration with researchers, drug developers, and clinicians anywhere in the world.

 

Share on facebook
Share on Facebook
Share on twitter
Share on Twitter
Share on linkedin
Share on LinkedIn
Share on email
Share via Email
Translate »