What is RARE-X building?

In this video, Patient Engagement and Data Leaders, Megan O’Boyle and Vanessa Vogel-Farley, explain what RARE-X is building for the future and where the program is today. The speakers explain how RARE-X enables rare patient communities to gather, structure, and securely share critical patient data, through a common platform, in collaboration with researchers, drug developers, and clinicians anywhere in the world.

 

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