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Simon Frost, the newest addition to the RARE-X board of directors, describes himself as an
Further development of data standards and governance, as well as additional case testing, is made
Jason Colquitt, the newest addition to the RARE-X board of directors, remembers the exhaustion he
Cynthia Grossman, the newest addition to the RARE-X board, says she’s “obsessed with the
The development of patient registries and natural history studies for rare diseases are critical to
New members will enhance RARE-X’s programs, pilots, and operational expansion with strategic
New RARE-X DEI program assures the diversity of the rare disease community is represented in the