Visit this page often to learn about the latest news, insights, and resources available from RARE-X.
Chris Austin describes the National Center for Advancing Translational Sciences, the National
About six months after Christina Hartman’s daughter Charlotte was born, the infant began missing
Anthony Philippakis is a physician, geneticist, and data scientist. He is currently a cardiologist
Investment in global federated data systems could unlock data about rare diseases and advance the
When RARE-X first sought to recruit Megan O’Boyle as patient engagement lead for the nonprofit,
The need to reframe our approach and response to rare disease is urgent. Approximately 10% of the