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Three years ago, at a New Jersey conference, three patient groups focused on the rare
Partnership supports the long tail of rare diseases and breaking down data silos to accelerate
While diversity, equity, and inclusion efforts have taken hold across government, business, and the
The healthcare technology company Ciitizen, which helps patients take control of their medical
Both organizations have aligned around mission and purpose to deliver transformative technology
At RARE-X, we are entrusted with a great responsibility: to collect patient data on behalf of
The Two Nonprofit Organizations Have Jointly Released a Feasibility Study Evaluating the Barriers