Xcelerate RARE: A Rare Disease Open Science Data Challenge is bringing together researchers and

In this video, RARE-X’s Data Protection Officer, Barry Weber, explains how RARE-X achieves

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, summarizes the October Science

Global Genes and RARE-X announced their respective boards of directors have signed a definitive

There are almost 11,000 distinct rare diseases (10,867 to be precise) – a number continuously

Global Genes and RARE-X to Merge, Creating Next-Generation Patient Advocacy Engine Aliso Viejo,

When California voters approved Proposition 14 in 2020, it created $5.5 billion in funding for the

Ryan Colburn has a penchant for things that go fast. He’s worked as an engineer on racecars,

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, recaps Exchange – A Patient

Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, recaps the August Science and

Rare disease advocates and organizations have learned that the path to a treatment begins with