For people with common health problems like diabetes or high blood pressure or high cholesterol,

Since launching its first rare disease communities last June, RARE-X, the collaborative platform

Kirk Lamoreaux, Senior Healthcare Strategist, discusses ‘The Power of Being Counted,’ a report

The ‘Power of Being Counted’ Report reveals previously severely undercounted numbers used for

For more than a decade, governments, nonprofits, and industry organizations involved in rare

RARE-X announced that through the development of its new ‘The Power of Being Counted’ Report,

Karmen Trzupek first learned about RARE-X while serving on the Board of Directors for the rare

Rare and Undiagnosed Network joins forces with RARE-X to enable patient data collection for

Gina Szjanuk and her three children have been on a diagnostic odyssey for more than nine years that

New RARE-X DEI report summarizes the diversity challenges facing rare disease communities and

Ensuring diversity, equity, and inclusion in rare disease organizations requires focused programs