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The advent of cell and gene therapies brings the rare disease community hope of powerful treatments
One way that RARE-X can help improve the diagnosis and treatment of people with rare conditions is
The lack of interoperability between data systems, concerns about patient privacy, and security
Rady Children’s Institute for Genomic Medicine recently completed a two-year pilot project with
When the Ehlers-Danlos Society was relaunched as an international organization in 2016, research