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For people with common health problems like diabetes or high blood pressure or high cholesterol,
Since launching its first rare disease communities last June, RARE-X, the collaborative platform
Kirk Lamoreaux, Senior Healthcare Strategist, discusses ‘The Power of Being Counted,’ a report
The ‘Power of Being Counted’ Report reveals previously severely undercounted numbers used for
For more than a decade, governments, nonprofits, and industry organizations involved in rare
RARE-X announced that through the development of its new ‘The Power of Being Counted’ Report,
Karmen Trzupek first learned about RARE-X while serving on the Board of Directors for the rare
Rare and Undiagnosed Network joins forces with RARE-X to enable patient data collection for
Gina Szjanuk and her three children have been on a diagnostic odyssey for more than nine years that
New RARE-X DEI report summarizes the diversity challenges facing rare disease communities and
Ensuring diversity, equity, and inclusion in rare disease organizations requires focused programs