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What is Real World Evidence? What is Real World Data? This RARE-X Definition Series Video
Two important representatives from RARE-X, Vanessa Vogel-Farley, RARE-X – Data
The advent of cell and gene therapies brings the rare disease community hope of powerful treatments
One way that RARE-X can help improve the diagnosis and treatment of people with rare conditions is
The lack of interoperability between data systems, concerns about patient privacy, and security
Rady Children’s Institute for Genomic Medicine recently completed a two-year pilot project with