This white paper explores the primary issues and requirements for data gathering that cell and gene

Welcome to the inaugural episode of RARE-Xtra, an occasional RARE-X podcast where we take a deeper

RARE-X is paving the way to advance rare disease research.  Faster treatments and cures will be

The National Economic Burden of Rare Disease Study report was released last month. This study,

Though the advent of smartphones and inexpensive sensors enables the capture of data that reveal

The Global Genes Next 2021 Report: A Time for Resilience and Ingenuity, written by Daniel Levine is

This day, this week, this month has served as an essential connecting point for rare disease

Simon Frost, the newest addition to the RARE-X board of directors, describes himself as an

Further development of data standards and governance, as well as additional case testing, is made

Jason Colquitt, the newest addition to the RARE-X board of directors, remembers the exhaustion he

Cynthia Grossman, the newest addition to the RARE-X board, says she’s “obsessed with the