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The development of patient registries and natural history studies for rare diseases are critical to
New members will enhance RARE-X’s programs, pilots, and operational expansion with strategic
New RARE-X DEI program assures the diversity of the rare disease community is represented in the
Patients’ data is critical to rare disease innovation, but it does little to advance progress if
The National Institutes of Health has established a new Center of Excellence in Genomic Sciences to
The Genomic Medicine Center at Children’s Mercy Hospital is working to sequence 100,000 genomes