RARE-X is a collaborative platform for global data sharing and analysis to accelerate treatments for rare disease.

RARE-X is a collaborative platform for global data sharing and analysis to accelerate treatments for rare disease.

Patients often struggle to gather, access, and share data that could lead to real breakthroughs

RARE-X equips patients to share their data with global researchers, clinicians, and drug developers

We believe empowering patient communities as data stewards benefits all rare disease stakeholders!

Scaling and Systematizing data collection will accelerate future treatments and cures

Slider

HOW CAN WE HELP?

Patients & Caregivers

Researchers

Industry Partners

Translate »